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Cystic fibrosis (CF) is a multi-organ disease best managed in a multidisciplinary setting in conjunction with a specialist centre for CF, with treatment tailored to the individual.Conventional treatment has improved greatly over the past few decades.And the more I got to know him, I realized that someone like him was worth anything that life threw in the way. We spend more time in the hospital than I wish we had to. I have someone who understands what I go through on a daily basis.When I was 15-years-old, I was diagnosed with anxiety and depression.The hardest part about dating was that I couldn’t find someone who understood what I was going through. Someone who understood what it was like to not feel normal compared to everyone else.
The abnormality in the CFTR gene explains the pathology of CF.Treat with nasal steroids initially; if this fails, polypectomy is usually performed (50% require repeat within two years).At least 85% of patients with CF have pancreatic insufficiency so will need to take pancreatic enzymes.We offer internet forums and platforms to enable people with CF to interact safely, and we live stream events wherever possible.For our UK Cystic Fibrosis Conference we also recorded interviews with some of our key speakers to help bring the event to life for people who were unable to attend.